Care, disability and HIV in Africa: diverging or interconnected concepts and practices?

Evans, R. ORCID: https://orcid.org/0000-0002-4599-5270 and Atim, A. (2014) Care, disability and HIV in Africa: diverging or interconnected concepts and practices? In: Soldatic, K. and Meekosha, H. (eds.) The global politics of impairment and disability. TWQ Bookseries. Routledge, Abingdon, pp. 69-85. ISBN 9781138776005

Abstract/Summary

Recent research and policy have recognised the central role of unpaid care-givers (often women and girls) in the global South. Disability rights perspectives, however, challenge the language of ‘care’ and ‘dependence’. Drawing on qualitative research with women living with HIV and children caring for them in Tanzania, and on learning from the National Community of Women Living with HIV and AIDS in Uganda (NACWOLA), this paper explores the divergences and interconnections between the concepts and practices of care, disability and HIV in the context of East Africa. Despite the development of interdependent caring relations, both care-givers and people living with HIV in Tanzania experience ‘diminished autonomy’. The participation of people living with HIV, including disabled people, in home-based care and in peer support groups, however, can enhance ‘relational autonomy’ for both care-givers and care-recipients. We reflect on opportunities and challenges for mutual learning and cross-movement advocacy by disabled people, people living with HIV and care-givers.